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Data Request

We are committed to provide access to transplant and donation data while ensuring the protection of the privacy and confidentiality of personal information of donors and recipients.

BCT is guided by the Provincial Health Services Agency (PHSA) and BCT Health Information Management policies for the collection, processing, release, retention and security of personal and aggregate clinical information. 

All requests for data must be submitted in writing using the Data Request Form. 

Time frame

Most data requests will be processed within 2-4 weeks. The time frame for processing requests depends on the complexity and volume of requests. All data requests are reviewed prior to processing. We will acknowledge your request within three business days of receiving the data request.

Type of request

The data application process depends on the type of data requested:

This is a summary of provincial data (ice. annual number of transplants) that does not include personal information or pose any potential harm to groups or individuals. Aggregate data is often requested for program management and quality improvement purposes by health authorities and other government agencies.

Most of this type of information can be found in the Statistics section of our website. If you are requesting data that is outside the parameters of the data on the website, then please complete and submit the Data Request Form.

Content

A research request involves access to identifiable or de-identified data about BCT patients and requires both approval from a Research Ethics Board and a formal Data Request Form and a Research Information Sharing Agreement.

To request this type of data, a Research Information Sharing agreement must be completed and signed by the principal investigator and the Provincial Operations Director of BC Transplant. The key areas of the information sharing agreement include a copy of the research protocol, clinical research ethics board approval, and in cases where personal identifiable information is required, a patient consent form is needed.

Once completed, please email or Email: datarequest@bct.phsa.ca
Fax:  604.877.2200.

Publication and distribution

Prior to publication BC Transplant needs to be notified and recognized as the data source in all publications.

If you have any questions or concerns regarding your data request, please contact us at datarequest@bct.phsa.ca.


SOURCE: Data Request ( )
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